Dr. Karen L. Herbst
MD, PHD

You may recognize her as the research physician on Mystery Diagnosis, featuring a man with Dercum’s Disease (The Man with 1000 Lumps). She has been working with people with problems with their fat (connective tissue) since 2000. In 2019 Dr. Herbst headed up a NIH-sponsored conference to establish the standard of care for lipedema and in 2020 she presented new ICD-10 codes for lipedema and Dercum’s Disease to the CDC. She continues her passion for helping people with connective tissue disorders as part of Total Lipedema Care.